I lay on the exam table, eyes following the wormhole paths in the pocked white ceiling tiles, trying hard not to swallow against the lump forming in the back of my throat. The ultrasound tech waves the probe over the contours of my neck, pausing to capture still frames on her screen. The gentle "click-click-click-click" as she traps her quarry with mouse and wand is all I can hear, save Matthew's soft breathing and the heavy beating of my own heart. Hospitals smell like hospitals. I have never liked the scent.
I am here for a head/neck ultrasound, an event which stresses me out more than I have cared to admit. All of the hard work of Endocrinologists and Phlebotomists and Radiologists and Pharmacists and BillingDepartmentists have brought me to this day and this table. It's the great Follow Up, a time to see exactly what's been happening in my neck since the radiation treatment. The hope is that her magic wand reveals exactly nothing. No tissue, no growth, no crazy, involved lymph nodes.
She finishes up the right side - where I've already warned her she'll find residual tissue - and hops over to the left "just to be sure." I stare at the abandoned worm colony in the plaster above, getting used to the slick smear of warm gel on my skin. On days like this, I am still not used to me.
She finishes, one final frozen view of my innerworkings on the screen. I sit up and rub the rough towel over my gooey neck. She tells me, even though she technically shouldn't - an untechnical tech, thank god- no suspicious lymph nodes, nothing causing huge amounts of concern...except "there's something there" - the right side - and she "can't be sure whether if it's a lymph node or tissue or what...could just be a lymph node." Brightly. Calmly. But, the right side is where the radioactive whole body scan told us before that the surgeon left a little behind, forgot the last scalpel scrape, and gifted me with an unwanted hive fit for hornets to take hold. "Could just be a lymph node." But, in this small, sterile room, with these heavy ceiling tiles being held up by hopes and prayers and hospital-grade putty, we know, of course, of course, it's not a lymph node. I ease into breathing, because this gets easier with time and, despite that it's only been nine months since the thyroid alarm was sounded, I know that, most likely, it's probably tissue, the last of my forgotten friend, and not, not, not the "or what" this lady in the scrubs cheerfully references.
I have had enough of "or what."
Three full business days later (I count them Friday-Saturday-Sunday-Monday-Tuesday on nervous fingers) the results to my ultrasound pop up in my online Penn Medicine electronic basket. It's as the tech says: fantastic lymph nodes. No idea what that other stuff is. It hovers, 8 x 3 x 6 millimeters, in the bottom right of my neck, its existence just troublesome enough to add another layer of complication to a new life I felt I was finally settling into.
The Endocrinologist calls me later that night as I pull into my driveway. I put the car in park and he explains to me what I'm pretty sure I don't want to hear: time to bring out the big diagnostic guns. Another Whole Body Scan is in order. I'll spend two weeks once again on the Low Iodine Diet, receive two more Thyrogen shots to propel my TSH upward, and swallow another capsule of I-123, a low dose radioactive iodine. Then, I'll return to the belly of the great white beast for some explicit closeups of the whateverness hovering in my throat. And then...well, we don't get that far in the conversation. He says his secretary will call me the next day to get the ball rolling.
I wait for his office to call, anxious to hear the timetable for this next round of upheaval, but, when no call comes by day two, I phone them. She's still wrestling with insurance for the order for Thyrogen, she says, and will call me once the approval goes through. I brace myself for the $500-$2000 bill that will soon follow.
I try to shake off the frustration and fear that comes with all of this. I am working through the multiple dose changes of Tirosint, the artificial thyroid hormone that needs to be kept at precisely a high-enough level to suppress my TSH (and thus, provide personal chemo for the cancer) and a not-too-high-enough level that will negatively affect my heart, head, and various other vital systems. This wibblywobbly balancing hits me with hosts of bothersome effects, including heart palpitations, hot flashes, wavering jittery-ness, and bizarre episodes where I can not not not find the word I was trying to speak and I stand there, fish-mouthed, until I can pluck it from wherever my hormonal brain has hidden it. I take a pill each day and wait four hours to eat, knowing I need to absorb as much as possible even as I worry that "as much as possible" is technically more than my body is happy with.
The anxiety about achieving that balance is enough to permeate my daily happenings with constant thoughts of my health. I hate thinking about my health. This is what we have doctors for, I think. To think about our health for us. I hate feeling so helpless in all of this.
But, this is not every day. Many days I feel strong. Grateful. Accomplished. Kickass, even. Some days I know that I am fighting this better than I would have believed possible. Most days I can not believe it has only been nine months. I gulp that amber-hued capsule at 4:18 am each day, gratefully aware that each one takes me closer to officially cancer-free, that each one is serving to fight my battle for and with me. I chase it with a full bottle of fresh, clear water, filling each steady swallow with a reminder that I will not always have to endure these jacked up Tirosint levels, that, one fabulous, future day, the doctor will look at me and my prescription and my by-then-improved test results, and say, "It's time to let you feel closer to you again." I'm so excited for that day.
Thank you for sharing... I went through my cancer battle and still continue to have my up and down days. Looking into the future of one day not having to take pills or the worries of tests. You are strong and courageous and I commend you for putting your story into words. I am not a writer; I did my story through photos. Good luck and many prayers.
ReplyDeleteThanks so much! :) Blogging has been a really helpful outlet for me; it's easier to make peace with things if I can sort them out and put them on paper (or laptop screen!). And, it's nice to be able to see how far I've actually come. I'm sure it's the same with your photos, right?
ReplyDeleteCancer is a jerk. Happy to hear you're winning the war! :)